Learn about some of the resources available for individuals and families coping with Shwachman-Diamond syndrome (SDS).

SDS Family Day

The SDS Registry hosts family conferences to share the latest updates from the Registry and to invite feedback. Contact us to learn more about upcoming events.

SDS Registry Family Day Group in 2020

Camp Sunshine

The SDS Registry participates in SDS Week at Camp Sunshine sponsored by the SDS Foundation.

SDS Registry team at Camp Sunshine in 2018

Shimamura Lab

The Shimamura lab studies inherited bone marrow failure syndromes and myelodysplastic syndromes, which are characterized by impaired blood cell production and leukemia predisposition. 

Shimamura lab team picture

Facebook Live Events

Watch our Facebook Live events to  SDSR team answers questions and provides updates for the SDS community.