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Recent Presentations
2024 SDS Family Day
The SDS Registry: A Partnership Between Patients, Families, and Researchers - presented by Dr. Akiko Shimamura and Dr. Kasiani Myers
Stem Cell Transplantation for Shwachman Diamond Syndrome - Presented by Dr. Kasiani Myers
Surveillance for Blood Complications in SDS - Presented by Dr. Akiko Shimamura
Management of SDS in Adults - Presented by Dr. Christopher Reilly
Lymphoma in Shwachman-Diamond Syndrome - presented by Dr. Helen Reed
Genetic Testing in SDS - presented by Dr. Helen Reed
Neurocognitive Considerations in SDS - presented by Dr. Jane Koo and Dr. Thea Quinton
Neuropsychological Evaluations and Resources - presented by Dr. Thea Quinton
Gastrointestinal Care in Shwachman Diamond Syndrome - presented by Dr. Amit Grover
Bone Health in SDS - presented by Dr. Christina Jacobs
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