top of page
DONATE
The SDS Registry
Mission
Join the Registry
Centers
Team
Enrollment
Learn about SDS
Patients & Families
Why a registry?
Patient Stories
SDS Resources
Presentations
Research
Latest SDS Research
SDSR Publications
SDS-Related Publications
Collaborators
Physicians
SDSR Board
FAQs
Ways to Help
More
Use tab to navigate through the menu items.
Recent Presentations
2024 SDS Family Day
Previous Event Recordings
Click Here
bottom of page