PHYSICIANS
Do you have questions about SDS?
The SDS Registry is a resource for physicians seeking the latest medical information and data about SDS. Please contact the registry staff and expert SDS clinicians by email at SDSRegistry-dL@childrens.harvard.edu.
SDS Registry
Easy Access Resources
Easily access our Registry Resources including educational handouts for families to learn more about SDS, general recommendations for medical monitoring, SDSR publications, how to send patient samples, and much more.
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Our Medical & Scientific Advisory Board
Alison Bertuch, MD, PhD
Dr. Alison Bertuch is Director of the Bone Marrow Failure Program at Texas Children's Cancer and Hematology Centers. Her clinical interests include oncology, osteosarcoma, and bone marrow failure disorders.
Courtney DiNardo, MD, MSCE
Dr. DiNardo is a clinical researcher with a specialized focus on prognostication and personalized therapeutics for patients with myeloid malignancies. She has completed formal training in epidemiology and biostatistics, with a Master’s of Science in Clinical Epidemiology obtained in June 2012.
Amit Grover, MD
Dr. Grover, a gastroenterologist at Boston Children's Hospital, investigates the pathophysiology and management of pancreatic disorders in children; in particular pediatric acute, recurrent-acute and chronic pancreatitis. Current studies include longitudinal analysis of acute and long-term outcomes in children with pancreatitis, as well as proteomic analysis for the development of a novel biomarker for pancreatitis.
Coleman Lindsley, MD, PhD
Dr. Robert Coleman Lindsley, MD, PhD, is a physician scientist at Dana-Farber Cancer Institute, specializing in research topics associated with MDS. His career has developed in conjunction with his interest in how disease evolves, and in turn, how new and existing therapies can interrupt the process of disease progression.
Adrianna Vlachos, MD
Dr. Adrianna Vlachos is a pediatric hematologist/oncologist and stem cell transplanter
at Cohen Children’s Medical Center in New Hyde Park, NY. Her clinical and research interests
include acquired and inherited bone marrow failure syndromes. She is the founder and director
of the Diamond Blackfan Anemia Registry (DBAR).
Lauri Burroughs, MD
Dr. Lauri Burroughs is developing safer, more effective bone marrow transplant procedures for children with noncancerous blood disorders, including sickle cell disease, marrow failure disorders and inherited immune disorders. Her research has focused on developing gentler regimens of pre-transplant conditioning that prepare the body to receive the transplanted blood stem cells.
Amy Geddis, MD
Dr. Amy E. Geddis is a pediatric hematologist-oncologist in Seattle, Washington, and is affiliated with multiple area hospitals. She has been in practice for more than 20 years.
Sioban Keel, MD
Dr. Sioban Keel is a board certified hematologist at SCCA and a UW associate professor of Hematology and Medicine. Dr. Keel earned her MD at the University of Minnesota. Her clinical and research interests include benign red blood cell disorders, iron metabolism, acquired aplastic anemia, congenital marrow failure syndromes, neurovisceral porphyrias, hemostasis and thrombosis disorders.
Taizo Nakano, MD
Dr. Nakano is a pediatric oncologist at Colorado Children's Hospital. His many clinical interests include general hematology, specifically inherited and acquired bone marrow failure syndromes, immune thrombocytopenia, inherited and acquired hemolytic anemias, iron metabolism, disorders of bleeding and clotting, and vascular birthmarks, malformations and tumors.