SHWACHMAN-DIAMOND SYNDROME REGISTRY

Accelerating research to find a cure for SDS

OUR MISSION

The Shwachman-Diamond Syndrome (SDS) Registry is committed to accelerating the pace of discovery for treatments and therapies of SDS.  The Registry provides access to clinical expertise as well as cutting-edge research. Patients, families, and medical professionals may contact the Registry to learn more about SDS.  

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SAMPLES & RECORDS

Every patient's experiences and samples hold vital clues to advance our understanding of SDS.  The SDS Registry enables patients to share their medical information and samples with researchers working to cure SDS.

OUR CLINICAL CENTERS
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JOIN

Contact our team to learn more about participating in the SDS Registry.

AREAS OF FOCUS
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Accelerate
Research

Harnessing science and clinical research to improve diagnosis and treatment of SDS.

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Empower Patients & Families 

Providing education and resources to SDS patients and families through access to clinical expertise and leading edge research. 

The Registry invites the SDS community to join the fight to beat SDS.  

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Engage
Physicians & Researchers

Sharing medical expertise  to improve clinical care. 

Promoting collaboration to advance SDS research.

GIVE TODAY TO ACCELERATE SDS RESEARCH